Everyday I learn something new about my disease. As I learn I will update these resources to share with those that want. Each of the resources posted here are from scholarly sources and help to support the diagnosis and treatment of lipedema. I am not a doctor and none of the information gathered here should be used to replace medical advice. These resources can be used as a teaching tools to help better inform our Canadian doctors and care providers. The best way to access care is to inform our doctors that there is a need for same. One story, one woman at a time we will work together to bridge the gaps in our care.
Read the article here https://journals.sagepub.com/doi/full/10.1177/02683555211015887
Read the article here https://www.sciencedirect.com/science/article/abs/pii/S002248042030189X
Read the article here https://bmcwomenshealth.biomedcentral.com/articles/10.1186/s12905-021-01174-y
Read the article here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7465366/
Read the article here https://pubmed.ncbi.nlm.nih.gov/28728329/
Read the article here https://www.ncbi.nlm.nih.gov/books/NBK545818/
Read the article here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6790573/
Read the article here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5935449/
Read the article here https://pubmed.ncbi.nlm.nih.gov/31356433/
Read the article here https://jddonline.com/articles/dermatology/S1545961621P0326X
Read the article here https://journals.lww.com/dermatologicsurgery/Abstract/2020/10001/Evaluation_of_Long_Term_Outcome_and_Patient.7.aspx
CONCLUSION Tumescent liposuction is a safe procedure with long-lasting results and high patient satisfaction.
Read the article here https://journals.sagepub.com/doi/pdf/10.1177/0268355520949775
Conclusion: The results show, that the positive effects of liposuction last 12 years postoperatively without relevant worsening. They imply that liposuction for lipedema leads to a permanent reduction of symptom severity and need for conservative therapy.
Read the article here https://onlinelibrary.wiley.com/doi/10.1111/iwj.13608
(conclusion surgery improves quality of life for lipedema patients)
Read the article here https://www.e-aps.org/journal/view.php?doi=10.5999/aps.2017.44.4.324
Read the article here https://pubmed.ncbi.nlm.nih.gov/30638291/
Read the article here https://pubmed.ncbi.nlm.nih.gov/21166777/
Read the article here https://pubmed.ncbi.nlm.nih.gov/26574236/
Read the article here https://pubmed.ncbi.nlm.nih.gov/32446570/
Read the article here https://pubmed.ncbi.nlm.nih.gov/33912372/
Read the article here https://www.ncbi.nlm.nih.gov/books/NBK573066/
https://www.gov.mb.ca/health/mhsip/oop.html
Sometimes, a patient needs medical treatment or care that cannot be provided in Manitoba. Manitoba Health and Seniors Care may cover some of the costs of this care, based on a specific approval process.
You may be eligible for help with costs related to getting medical care in another province or country when:
An appropriate physician means a Manitoba specialist. A specialist is a doctor who focuses on a certain area of medicine (for example, a physician who specializes in treating heart disease or cancer). “Appropriate” means that the specialist’s field of expertise is related to the patient’s disorder (for example, an obstetrician, or pregnancy specialist, cannot make a neurological, or nerve disorder referral).
Specialists can diagnose and assess very specific illnesses and conditions. They are also likely to know where the treatment and expertise that a patient requires is available.
Your family doctor may decide it is necessary to refer you to a specialist. The specialist will assess your condition or illness, and may prescribe treatment.
If the prescribed treatment is not available in Manitoba:
In emergencies (e.g., life-threatening cases, such as an organ transplant), this process can be handled very quickly.
Do not arrange for doctor appointments, transportation or any other care-related services until your doctor’s referral request is approved. If you do not have prior approval, you may be held responsible for any costs you incur.
Yes. Manitoba Health and Seniors Care will pay for care or treatment in the United States only if all Canadian medical resources have been exhausted. In some cases, documentation (i.e., proof) that you have seen other Canadian specialists may be required before your request for referral outside the country will be considered.
In Canada:
In the United States:
If you are referred for medical care outside Canada, and your referral is approved, you may have to pay some of the costs for your medical and hospital services.
For medical and hospital services provided in the U.S., Manitoba Health and Seniors Care will cover:
If your costs for medical and hospital services exceed these coverage limits, it is your responsibility to pay the difference, unless you qualify for special assistance based on financial hardship. This is because costs for such services in the U.S. are generally much higher than costs for the same services in Canada.
If your out-of-province referral is approved, you may be reimbursed for reasonable transportation costs. Accommodations, meals, taxis, ambulance and other expenses are not covered. Also see: Travel Subsidy for Out-of-Province Medical Referrals.
Travel costs for an escort may also be reimbursed if the escort is required for your well-being and safety during travel. If an escort is required, your specialist must notify Manitoba Health and Seniors Care by including that information in his or her initial letter of request.
If you have already paid a doctor or hospital bill, you must include in your request for reimbursement the original receipt showing the amount you paid. If you do not include a receipt, Manitoba Health and Seniors Care will pay the doctor or hospital directly.
For more information, call or write:
Out-of-Province Claims Manitoba Health and Seniors Care 300 Carlton Street Winnipeg MB R3B 3M9 Telephone: 204-786-7303 Toll-free: 1-800-392-1207 Ext. 7303 Email: OutofProvinceClaims@gov.mb.ca TDD/TTY: 204-774-8618 For TDD/TYY Relay Service outside Winnipeg, call 711 or 1-800-855-0511 |
reference for rationale for coverage in Canada – view here https://www.premera.com/medicalpolicies/7.01.567.pdf
see Lipedema classified as a disease in 2021 https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/1172950828
All appeals for previous application for lipedema coverage can be found as a matter of public record at the CanLII website at https://www.canlii.org/en/#search/text=lipedema
The Lipedema Project https://www.lipedema.org/resources?gclid=CjwKCAjwq9mLBhB2EiwAuYdMtc-NQP0JH6JpJyogNuUokucQ5ydf0OkOq0kKCxwCDwPAIiBEPWnbLBoCZ_UQAvD_BwE
See the link for a comprehensive research list, brochures to share with your doctors, a diagnosis guide and more.
List of MLD and lymphatic specialists in Manitoba https://www.lymphmanitoba.ca/wcm-docs/docs/resources/lam_certified_therapist_chart_sept_2021.pdf
Visit Lipedema Simplified here https://lipedema-simplified.org/
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