What I have Learned so far...

Everyday I learn something new about my disease. As I learn I will update these resources to share with those that want. Each of the resources posted here are from scholarly sources and help to support the diagnosis and treatment of lipedema. I am not a doctor and none of the information gathered here should be used to replace medical advice. These resources can be used as a teaching tools to help better inform our Canadian doctors and care providers. The best way to access care is to inform our doctors that there is a need for same. One story, one woman at a time we will work together to bridge the gaps in our care. 

Articles List

Read the article here https://journals.sagepub.com/doi/pdf/10.1177/0268355520949775

Conclusion: The results show, that the positive effects of liposuction last 12 years postoperatively without relevant worsening. They imply that liposuction for lipedema leads to a permanent reduction of symptom severity and need for conservative therapy.

Insurance reference

https://www.gov.mb.ca/health/mhsip/oop.html

Out-of-Province Medical Referrals

Sometimes, a patient needs medical treatment or care that cannot be provided in Manitoba. Manitoba Health and Seniors Care may cover some of the costs of this care, based on a specific approval process.

You may be eligible for help with costs related to getting medical care in another province or country when:

  • an appropriate physician recommends that you need a necessary, specific medical service (i.e., care or treatment); and
  • that treatment is not available in Manitoba.
What is an “appropriate physician”?

An appropriate physician means a Manitoba specialist. A specialist is a doctor who focuses on a certain area of medicine (for example, a physician who specializes in treating heart disease or cancer). “Appropriate” means that the specialist’s field of expertise is related to the patient’s disorder (for example, an obstetrician, or pregnancy specialist, cannot make a neurological, or nerve disorder referral).

Specialists can diagnose and assess very specific illnesses and conditions. They are also likely to know where the treatment and expertise that a patient requires is available.

What is the approval process?

Your family doctor may decide it is necessary to refer you to a specialist. The specialist will assess your condition or illness, and may prescribe treatment.

If the prescribed treatment is not available in Manitoba:

  • the specialist must write a letter to Manitoba Health and Seniors Care, and provide certain information about your case;
  • Manitoba Health and Seniors Care will review the letter from the specialist, and seek an opinion from a medical consultant if necessary;
  • after reviewing your case, Manitoba Health and Seniors Care will write back to the specialist to approve or deny coverage for out-of-province treatment. You will also receive a copy of this letter.

In emergencies (e.g., life-threatening cases, such as an organ transplant), this process can be handled very quickly.

Do not arrange for doctor appointments, transportation or any other care-related services until your doctor’s referral request is approved. If you do not have prior approval, you may be held responsible for any costs you incur.

Does it matter where my doctor refers me?

Yes. Manitoba Health and Seniors Care will pay for care or treatment in the United States only if all Canadian medical resources have been exhausted. In some cases, documentation (i.e., proof) that you have seen other Canadian specialists may be required before your request for referral outside the country will be considered.

What costs are covered if I am approved for treatment outside Manitoba?

In Canada:

  • Doctor bills – The Manitoba government has made arrangements with all other Canadian provinces and territories (except Quebec) to send bills for medical care directly to Manitoba Health and Seniors Care for payment. In most cases, you do not have to pay any out-of-pocket expenses for approved medical services provided in Canada.
  • Hospital bills – Similar arrangements apply to hospital care. If you are admitted to a hospital anywhere in Canada, Manitoba Health and Seniors Care will pay the standard ward rate on your behalf.

In the United States:

If you are referred for medical care outside Canada, and your referral is approved, you may have to pay some of the costs for your medical and hospital services.

For medical and hospital services provided in the U.S., Manitoba Health and Seniors Care will cover:

  • doctor bills, at the same rate a Manitoba doctor would receive for similar services; and
  • hospital bills, up to 75 per cent of insured hospital services.

If your costs for medical and hospital services exceed these coverage limits, it is your responsibility to pay the difference, unless you qualify for special assistance based on financial hardship. This is because costs for such services in the U.S. are generally much higher than costs for the same services in Canada.

What about travel costs?

If your out-of-province referral is approved, you may be reimbursed for reasonable transportation costs. Accommodations, meals, taxis, ambulance and other expenses are not covered. Also see: Travel Subsidy for Out-of-Province Medical Referrals.

What if I need an escort?

Travel costs for an escort may also be reimbursed if the escort is required for your well-being and safety during travel. If an escort is required, your specialist must notify Manitoba Health and Seniors Care by including that information in his or her initial letter of request.

How do the bills get paid?
  • Doctor and hospital bills – In most cases, the original doctor bills and hospital bills will be sent directly to Manitoba Health and Seniors Care for processing.
  • Transportation costs – You must send your original receipts for transportation costs, or a letter requesting mileage reimbursement, to the Out-of-Province Claims Section at Manitoba Health and Seniors Care.

If you have already paid a doctor or hospital bill, you must include in your request for reimbursement the original receipt showing the amount you paid. If you do not include a receipt, Manitoba Health and Seniors Care will pay the doctor or hospital directly.

For more information, call or write:

Out-of-Province Claims

Manitoba Health and Seniors Care

300 Carlton Street

Winnipeg MB R3B 3M9

Telephone: 204-786-7303

Toll-free: 1-800-392-1207 Ext. 7303

Email:  OutofProvinceClaims@gov.mb.ca

TDD/TTY: 204-774-8618

For TDD/TYY Relay Service outside Winnipeg, call 711 or 1-800-855-0511

  1. See family doctor and get diagnosis or referral to doctor that can diagnose Lipedema.
  2. Request copy of all medical records from Manitoba Health
  3. Write narrative story and timeline of events for Lipedema. 
  4. Consider seeing multiple doctors in Winnipeg to discuss Lipedema (either for the purposes of getting a diagnosis or proving the lack of available resources here in MB)
  5. Proceed with multiple consultations with Lipedema surgeons to gather information and as much evidence as possible to support case for surgery.  
  6. Get referral to Specialist as defined by MB Health to do the following (Plastic Surgeon as per Manitoba Health)
    1. Assess and diagnose Lipedema
      1. the specialist must write a letter to Manitoba Health and Seniors Care, and provide certain information about your case;
      2. Manitoba Health and Seniors Care will review the letter from the specialist, and seek an opinion from a medical consultant if necessary;
      3. after reviewing your case, Manitoba Health and Seniors Care will write back to the specialist to approve or deny coverage for out-of-province treatment. You will also receive a copy of this letter.
    2. Have a Manitoba based specialist consult directly with Lipedema surgeon of your choice to discuss care and management of your case – via letter that can be used as evidence in the appeal process. 
  7. Await MB health approval for out of province services 
  8. If denied by Manitoba Health, pursue the appeals process. Bring all narrative documentation, medical reports, lists of conservative treatments, specialist appointments notes (including MLD therapist), and of course ALL scholarly articles for review. As well as cite the precedent of 3 women covered for lipedema surgery in the USA from Manitoba and the 5+ women covered for full surgical course of treatment by the province for Lipedema in British Columbia.

WHO classifies Lipedema!!

see Lipedema classified as a disease in 2021  https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/1172950828

 
EF02.2 Lipoedema 
Description
Lipoedema is characterised by non-pitting diffuse “fatty” swelling, usually confined to the legs, thighs, hips and upper arms. It may be confused with lymphoedema. Lipoedema may also occur in the scalp.

Coded Elsewhere

Manitoba Health Appeals

All appeals for previous application for lipedema coverage can be found as a matter of public record at the CanLII website at https://www.canlii.org/en/#search/text=lipedema

 

Lipedema Resource Websites

The Lipedema Project https://www.lipedema.org/resources?gclid=CjwKCAjwq9mLBhB2EiwAuYdMtc-NQP0JH6JpJyogNuUokucQ5ydf0OkOq0kKCxwCDwPAIiBEPWnbLBoCZ_UQAvD_BwE 

See the link for a comprehensive research list, brochures to share with your doctors, a diagnosis guide and more. 

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