Welcome to life beyond Lipedema
One Canadian woman’s journey with Lipedema
This is a personal account blog that shares my own story and journey with Lipedema. We each have our own path to walk and with that in mind please know that none of the information shared here should replace the advice and council of the medical professionals in your life.
Writing this blog is an outlet and a living road map of the journey I am on. A journey in which I know I am not alone. I have heard from so many women whose stories could be my story. So despite a constant stream of doubt and fear I am going to leap anyway. Please proceed with kindness and desire to understand.
There was life before lipedema, and there is life beyond lipedema. Presently I am on a journey to advocate for access to healthcare from the Province of Manitoba for treatment of my condition. Armed with persistence that is seldom matched and a passion for women’s health (common amongst us Labour and Delivery nurses) I aim to share the steps of my journey.
If you have been diagnosed with/or suspect you have lipedema welcome! To those reading not affected with lipedema thank you in advance for proceeding thoughtfully.
What is Lipedema?
Lipedema is a loose connective tissue disease predominantly in women identified by increased nodular and fibrotic adipose tissue on the buttocks, hips and limbs that develops at times of hormone, weight and shape change including puberty, pregnancy, and menopause. Lipedema tissue may be very painful and can severely impair mobility. Non-lipedema obesity, lymphedema, venous disease, and hypermobile joints are comorbidities. Lipedema tissue is difficult to reduce by diet, exercise, or bariatric surgery. – Standard of Care for Lipedema US
Lipedema Canada
How I applied for out-of-country coverage for Lipedema Surgery with Manitoba Health
Stolen Healthcare
The Cost of Winning
The Weight of it All
Recent posts
Hello, California!
There is no hiding the exhaustion and toll that this journey has had on me. The dark circles under my eyes and makeup that runs
Out in the Open
Lipedema in the Media and still the Government remains silent. 51 Days of silence and denials, even in the face of undeniable precedent. With everything in jeopardy and no time to lose big decisions need to be made.
Silent No More
This diagnosis has broken me twice now. The first time on the night I received my diagnosis was back in July. Then again last week
Don’t Let Them Tell You No
Fighting like a warrior woman to get coverage for lipedema surgery from Manitoba Health. Don’t let them tell you no!
In the hands of Manitoba Health
There is restlessness in waiting. The kind of mind-numbing fixation that robs you of your last moments of sleep every morning and eats at you
Booked my first surgery
Typing with trembling hands. After months of research and ruminating I have booked my first surgery for 8 weeks from now. I’ll turn 38 in
Hello
I am Emma
Just a Canadian woman with Stage 3 lipedema on a journey to reclaim my life. With a fighting spirit, I am using all the energy I have inside to navigate getting treatment for Lipedema in a country that can’t yet see us.
Trending
How I applied for out-of-country coverage for Lipedema Surgery with Manitoba Health
Stolen Healthcare
